General Caregiver Support
Alzheimer’s Association – over 81 chapters in the United States
1.800.272.3900 (Free 24/7 Helpline)
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support, and research. If you need to talk, their toll-free 24/7 Helpline provides reliable information, referrals and support in multiple languages. Click on their name above to be taken to a map of the U.S where you can find information in your area on special educational programs, information and referral, free care consultations, and ongoing support groups.
866.AFA.8484 (Free helpline 9am to 5pm EST Monday to Friday)
One of the services this organization provides is a free help line. You can call them during working hours and talk to a staff members who can provide information and links to community resources, healthcare professionals, social services and other support.
This website is provided by the U.S. Administration on Aging. After you enter your zip code, city or county, you’ll receive a list of local aging agencies in your area that can help you find resources in your area, including transportation, meals, home care, caregiver support services and health insurance counseling. You can also call 1-800-677-1116 on weekdays to speak with an Eldercare Locator specialist.
On-Line Care Calendar & Resource Databases
This website allows you to create a calendar of care that shows when volunteers are needed and what tasks they’re needed for. There are messages boards, photos, and places to share information and leave messages for the family. One person acts as the coordinator, sets up the web space, and invites others to join the site. This is a free service.
One especially helpful online resource by the Alzheimer’s Association is their CARE OPTIONS. It allows a caregiver or individual to enter important information about an individual’s medical condition, needs, and preferences. After this information is entered, a personalized printout will be created with recommendations and questions to ask when screening a caregiver or facility. They also maintain a free 24-hour help line at 800-272-3900.
This service, by the Fisher Center for Alzheimer’s Research Foundation, allows you to locate a wide variety of resources, including medical suppliers and geriatric care managers. After you enter your zip code, city, or county, you’ll receive a list of names, addresses, and telephone numbers for the resources available to you.
Certified Aging in Place Specialists (CAPS) are builders, contractors, designers and architects who have been specially trained and certified by the National Association of Home Builders to make the home more accessible and safer. CAPS are a good option for people who can afford to pay privately or take out a private loan, as CAPS are remodelers and do not accept Medicaid or other forms of reimbursement.
Home Depot stocks helpful home products and can special order select products such as higher height toilets and walk-in shower stalls. Some Home Depots have installation services and others do not. Check with your local Home Depot to see what, if any, installation services they provide. For example, most will remodel an entire bathroom, but not install single items, such as grab bars.
Lowe’s stocks helpful home products and can special order select products such as higher height toilets and walk-in shower stalls. Lowe’s contracts out to independent installers who do both large scale remodeling projects and small, single item projects. Check with your local Lowe’s to see what installation services they provide.